Hi there @KJ, I'm really sorry to hear that you feel like you're living in limbo, that must be tough at times. My name is Kylie and I'm the Community Coordinator in the forums. It's so nice to meet you 😊 You mention that you feel like you're not moving backwards, so perhaps that's the silver lining just for the moment? Your list of things that help you is wonderful, thanks so much for sharing with us all! It seems like you've found a way to make your current situation work for you, as much as is practical. Using notes on your phone is a clever hack for memory. Do you save them into an app? I often have a bunch of ideas or see a Tweet that I want to save and I'd love a suggestion for how to best collate them all. I don't have Long COVID, but I do have chronic fatigue, and so much of what you've listed here crosses over with the techniques I've used over the years. Are you familiar with the spoon analogy? Thanks again for sharing your tips. We've created a post over here especially for self-care tips living with Long COVID. If you have the energy (I know it's a finite and precious resource!), please feel free to add your tips there too if you like. Hope you've been having a great week! Kylie 🌻

Hi @Andrew, Big thanks for sharing your story here with us in the forum 😊 You've really captured your experience in a way I'm sure so many will empathise with. It's wonderful to hear that your recovering, even if it's slow going at times. It sounds like there are some similarities between Long COVID recovery and the Tortoise and the Hare parable 🐢 Would that be a fair description? One of the things we'd love to see and support here in the community is an opportunity for advocacy and knowledge sharing. It's wonderful to have new members here with us who share that goal! As a new member, if you ever need any assistance please feel free to tag one of our forum staff members like this @Kylie (Community Coordinator) or @Eveand we'll endeavour to reply to your enquiry as quickly as possible within working hours. Welcome, I hope you find the community to be a safe and supportive one. Kylie

Hi there @Gnome, Welcome to the Long COVID Support Community! My name is Kylie and I'm the Community Coordinator here in the forum, it's lovely to e-meet you 😊 Thank you for sharing your experience with Long COVID here so openly with us. We know that whilst it can feel like a weight is lifted in sharing your story, it can also feel a little vulnerable, so I wanted to acknowledge that. You mention you've been living with Long COVID since March, 2020...that's quite a long slog. I'm sorry to hear that you've had to navigate symptoms such as the ones you mentioned – whilst things like hair loss and muscle pain may not be an immediate urgent concern in the medical field, when these symptoms start to add up it can sometimes feel like a weight to carry. It's wonderful you've been able to be proactive in your self-care around this diagnosis. Have you found the support you need with your treating team? Pacing, that is absolutely one of the keys in recovering from an illness, be it Long COVID or any other. Having navigated these symptoms for the past two years or more, have you found a groove or routine that works for you? I'm sure there are many reading along who are recently diagnosed and would love to hear what's been working for you. Warm wishes and healing vibes to you 🌻 Kylie

I've just finished watching The Dropout, a miniseries about Elizabeth Holmes and her "failed" health startup. Was an interesting watch!