After sharing my story on an international website last week someone suggested I check out Dysautonomia. Whilst none of the common types of Dysautonomia seemed to match what I'm experiencing, a less common type (Inappropriate Sinus Tachycardia) does. In fact my heart beats so fast it even wakes me up in the middle of the night. Then to confuse the situation, over the last few days I've been having dizzy spells when getting in and out of bed, which is more like POTS. I'm due to see my GP again mid February and all she wants to investigate is a sleep study for why I'm so tired all the time. Its all so frustrating!
I am sorry to hear about your symptoms and the frustration that you're feeling in regards to the management of your health. That all sounds incredibly challenging.
Have you managed to find ways to ease your Inappropriate Sinus Tachycardia?
I hope that you have someone at home who is available to provide you with support and care.
I live alone so it’s just me & my dog. The only thing I’m doing till my next appointment is practice mindfulness meditation and try to eliminate as much stress as possible.
Okay - well I am pleased to hear about the company of your dog! Animals can provide such comfort I find.
Your stress management plan sounds like a great idea - mindfulness meditation is a wonderful tool. I've also heard that breathing exercises can be quite beneficial to reducing stress and regulating our nervous systems.
So yesterday I attended an appointment with my Thoracic physician, blood tests were all good, lung function test showed that my breathing has now come up to almost 70% which is good news. I have to undergo more tests in 4 months time, including a nuclear scan so find out if the clots have dispersed.
Still no reference from the specialist to "long covid", beside the breathing issues I am finding that I am so suffering from fatigue. I read an article online that referenced PEMS, I had no idea what it was so did some online research and discovered this stands for Post Exertion Malaise. I'm not sure if this is a medical term or just another online term but it certainly describes how I feel most days after any small amount of exertion.
Thankyou for your generous update - I am incredibly pleased to hear that your lung function test has improved! Such fabulous news!
Yes, I have also read about PEMS - it seems to be a fairly common occurrence among those experiencing Long COVID. Have you had a read of our research page? We have an exercise section which we aim to update when emerging news is released on the topic. It may provide an interesting read for you! https://www.longcovidsupport.org.au/research
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Hey Sally
After sharing my story on an international website last week someone suggested I check out Dysautonomia. Whilst none of the common types of Dysautonomia seemed to match what I'm experiencing, a less common type (Inappropriate Sinus Tachycardia) does. In fact my heart beats so fast it even wakes me up in the middle of the night. Then to confuse the situation, over the last few days I've been having dizzy spells when getting in and out of bed, which is more like POTS. I'm due to see my GP again mid February and all she wants to investigate is a sleep study for why I'm so tired all the time. Its all so frustrating!
So yesterday I attended an appointment with my Thoracic physician, blood tests were all good, lung function test showed that my breathing has now come up to almost 70% which is good news. I have to undergo more tests in 4 months time, including a nuclear scan so find out if the clots have dispersed.
Still no reference from the specialist to "long covid", beside the breathing issues I am finding that I am so suffering from fatigue. I read an article online that referenced PEMS, I had no idea what it was so did some online research and discovered this stands for Post Exertion Malaise. I'm not sure if this is a medical term or just another online term but it certainly describes how I feel most days after any small amount of exertion.